WELCOME!
Our Mission in Hospice Care
As family and loved ones of our patients, you may receive a CAHPS Hospice Survey after your loved one has passed away. The survey allows you to assess if we at Brighton provided exceptional customer service. To ensure we are fulfilling this mission, we aim to apply the following customer-centric principles that we have summarized in the acronym CREATE:
C – Communicate, Communicate, Communicate
R – Respond Quickly
E – Educate with every interaction
A – Ask how we can better support
T – Treat everyone with respect
E – Every Visit on Time
We know that communicating with you is paramount. We recognize that responding Quickly and being on time to every visit reflects how much we care. We realize constant training and education ensure you and your loved one benefit from the best industry practices. We welcome your feedback on how we can provide better support. Finally, we appreciate the need for all involved to be treated with respect. Please engage with your care team on how the hospice is CREATING an exceptional customer experience.
Your hospice care team will consist of: Physican, Nurses, Certified Nurse Assistant, Medical Social Worker, Spiritual Support, Volunteers, Music and Massage Therapist as needed.
Medication Education
Lorazepam (Ativan)
- Uses: Anxiety, agitation, and shortness of breath.
- Possible Side Effects: Drowsiness, dizziness, nausea, constipation, and restlessness or excitement.
- Inform your hospice nurse if: You have difficulty sitting still or experience slowed or shallow breathing.
- Do not stop or skip taking doses before talking to your doctor or nurse.
Docusate Sodium (Colace)
- Uses: Constipation or to prevent constipation.
- Possible Side Effects: Stomach cramps.
- Inform your hospice nurse if: No bowel movement in the last 3 days or straining to pass hard stools.
- Stop taking if you develop diarrhea.
Zofran
- Uses: Nausea and vomiting.
- Possible Side Effects: Headache, constipation.
- Inform your hospice nurse if: Your nausea is not well controlled.
Acetaminophen (Tylenol)
- Uses: Fever reducer and mild to moderate pain.
- Possible Side Effects: Nausea, stomach pain, loss of appetite, dark urine.
- Inform your hospice nurse if: Your pain is not well controlled.
- Do not take more than directed.
Morphine (Roxanol)
- Uses: Moderate to severe pain and shortness of breath.
- Possible Side Effects: Sleepiness, nausea, dry mouth, itchiness, dizziness, confusion, constipation (you’ll be placed on a stool softener/laxative).
- Inform your hospice nurse if: Pain not controlled or you have slowed or shallow breathing.
- Do not skip a dose. If pain decreases, tell your nurses before stopping the medication.
Morphine and End-of-Life Myths
- Myth: Morphine Hastens Death
Reality: Morphine doesn’t speed dying — it enhances comfort and relieves pain. - Myth: Morphine Causes Respiratory Depression
Reality: When managed correctly, the risk is low and carefully monitored. - Myth: Morphine Sedates or Impairs Cognition
Reality: Sedation is temporary and can be adjusted; patients often stay alert and comfortable. - Myth: Morphine Should Be Avoided Due to Addiction
Reality: At end of life, pain relief and comfort are the priority — addiction is not a concern.
Training for Caregivers
- Training for Restlessness and Agitation
- Transferring Guidelines and Training
- Dyspnea/Shortness of Breath training
Dyspnea, commonly known as shortness of breath, is the subjective sensation of difficulty or discomfort in breathing. It can manifest as a feeling of breathlessness, tightness in the chest, or an inability to get enough air. Dyspnea can occur gradually or suddenly and may be associated with various medical conditions, such as respiratory, cardiovascular, or metabolic disorders.
When to Seek Advice Regarding Dyspnea:
Patients experiencing dyspnea should seek medical advice promptly, especially if: it stops you from doing what you want to do. Skin turns bluish on face, ears, fingers, and toes. You feel fearful, anxious, nervous, or restless. When it is not relieved or gets worse.
Tips to Relieve the Effects of Dyspnea:
Individuals experiencing dyspnea can consider the following tips to help alleviate symptoms:
1. Pursed-Lip Breathing:
- Inhale through the nose for two counts.
- Exhale through pursed lips for four counts.
- This technique helps regulate breathing and improve oxygen exchange.
2. Use of Breathing Techniques:
- Techniques using stomach muscles can help improve lung function and reduce the work of breathing.
3. Positioning:
- Sitting upright or leaning slightly forward may make breathing easier.
- Propping oneself up with pillows while sleeping can also be beneficial.
4. Stay Hydrated:
- Maintaining adequate hydration helps keep the respiratory mucous membranes moist, potentially easing breathing.
5. Avoid Triggers:
- Identify and minimize exposure to triggers, such as allergens or environmental pollutants.
6. Medication Adherence:
- Take prescribed medications as directed, especially for chronic respiratory or cardiovascular conditions.
7. Energy Conservation:
- Prioritize activities and use energy-saving techniques to avoid overexertion.
It’s crucial to note that these tips are general suggestions and may not be appropriate for all individuals. Anyone experiencing dyspnea should seek guidance from healthcare professionals for a personalized evaluation and management plan based on their specific medical history and conditions.
Our care team is available during regular business hours, but is also just a phone call a way in the evenings, weekends and holidays.
On Call Questions
Examples of situation when you should contact on call nurse
- Pain that does respond to pain medications
- Difficulty breathing
- New onset of agitation or restlessness
- Fall occurs
- Uncontrolled nausea, vomiting
- Fever
- Patient need to be taken to the hospital
- Patient death
